Video Clip - Aidai December 2007

Photos from the playground today

A Quick note from Papa

Hi all
Thanks for following a great story! Hi Casey =).....Elizabeth has done a great job getting you all caught up....I figured I'd throw in my 2 cents.....I'm in love, madly, head over heels, for life, in love....with 2 wonderful females.....even though I'm wrapped around both their little fingers, I'm feeling like I'm totally guilty of creating a "daddy's girl"....she is wonderful, and truly beyond words, I feel in love 13 months ago, and she has grown into so much more of herself, it's so much fun to be a part of......tomorrow I get my head shaved for a cancer fund raiser, can't wait to see how that goes over.....I've been trying to prepare her!!! But then we have the garden....peas and carrots tomorrow, and on sunday we'll start peppers in the house...she loves to play in the dirt with papa, we'll also finish the mulching....which means she can break out her rake!! I've got an awesome 14 year old son, learning to be a Papa of a 4 year old princess is great fun!!! All I can think of lately is how just over 13 months ago, all we wanted was to have her home, love her and start getting her treated for the things she needed, now 6 months into it, we're so encouraged, and she's so at home...it's just fantastic...maybe Elizabeth and I can catch our breath a little....
Thanks for caring...it means a lot!!

Bill

6 Months Home!

Today marks 6 months since Aidai, my mom and I arrived in Boston after a long journey home. I don't really have much to say for some reason. It is unbelieveable that she has only been here for 6 months. It seems like she has been here forever in some ways and in other ways I feel like she just got here. I do know that I can't imagine life without my little munchkin. As a coworker said, Aidai is like a little pocketful of sunshine. She brings a smile to my face every day. People constantly comment on what this all must be like for us and that makes me think about how crazy this all must be for Aidai and yet she is just rolling with it, taking each day as it comes and growing and learning. Thank you all for still following our journey!

Below are some pics I took on the porch today!

Easter Egg Hunt Video

Boston Children's Hospital Appointment

Yesterday we ventured down to Boston Children's Hospital to have a long awaited orthopedic appointment with the wonderful Dr. Melkonian. Those of you that have been reading awhile probably remember our not so pleasant prior experience in which a doctor declared she needed surgery in a few years but no other interventions even though she constantly fell. Well this doctor actually asked us about how she functions, watched her walk and run with her brace on and off and actually *gasp*, touched her. This doctor, and hospital was so awesome that it almost completely washed away the bitter taste in my mouth from the other guy, almost.

We had a rough time getting out of the house and completely forgot the camera. Oh well, it was just Aidai's first subway ride! Maybe we'll get photos of her 2nd ride. She evidently gets motion sick after about 2 hours in the car cause she threw up in the car, same as last time headed to Boston. I can't figure out why now after making it on the long trip to Almaty but I am just sooooo glad that she didn't throw up in that car. Although, if we had been riding in the other car there would have been a perfect person to aim at and I don't mean Maria, Ellie, Jennifer or the driver...

So we trekked down to the subway and then took the subway for about an hour to the Children's Hospital stop. The hospital is really beautifully done and colorful. We ate at the cafe there and it had alot of choices. I hope to never have to spend many days there but atleast it seems to be a somewhat decent place for the families and kids that need to be there alot.

So we spent quite a bit of time there. The doctor looked over the neurology paperwork and the paperwork from the physical therapist as well as the x-rays from the other ortho appt. After a thorough examination he determined that Aidai will most likely need surgery but not in the next 4-5 years. The main issue is her left leg which is the leg she currently has a brace on. He agrees that she has cerebral palsy and that her right foot or left hand might be affected as well but, as others said, too early to tell.

So the current plan is to start what is called serial casting in order to stretch the tight muscles and heel cord. This should loosen things up so that she will actually be able to put her heel down instead of walking on her toes. On May 12th she will get a cast put on her left leg from just below the knee to her toes, or maybe covering her toes, not sure. She will be able to walk on it, they will give her a special boot to wear. Two weeks later we will go back and they will take off the cast, take measurements, and put a new cast on. Then, two weeks later, the cast comes off and she gets a new brace to wear. So a month of the cast followed by 6-8 weeks with the brace. Then we go back to the doctor and see if they need to cast again, if she needs to keep wearing a brace or if she needs no correction. Luckily, the doctor will be doing these visits in Exeter, NH. which is a little over an hour away. The first one is at 7am, I think Aidai will be making that trip in pajamas, perhaps I will too...

So we are looking forward to this treatment with high hopes. We are glad that we can get it over with before summer is in full gear since it means sponge baths, sweaty leg, etc. It would be great if she didn't have to wear the brace anymore but we aren't aiming for that. We just hope she can walk more normally with the support of the brace cause we are concerned for her safety since she falls and runs into things so much.

Easter Photos